When we shall leave this place

May 16, 1961 – January 10, 2016

My longtime veterinarian has a theory about pet’s names that she shared with me years ago. I was in the waiting area of her office with my terrified cat when the next patient, a ginormous St. Bernard, was summoned by the vet tech with a cheerful, “Come on, Tiny.”

I laughed about it with the vet later and she said, “You know, animals have a way of growing into their names and they just seem to fit.” I think she’s right and I think it works that way for some people, too.

It’s certainly the case with my wife Joy and it was most certainly true for my friend, Kristel Sweet Wooten. She was simply one of the sweetest souls I have ever known and she died in January at the shattering age of 54.

I’ve avoided writing about her death until now for several reasons but the most honest one is that it just cut too close to home for me. You see, Kristel and her wife Mary were married a few months before Joy and me in the spring of 2014. Like us, they went to Washington, DC to be legally wed and then held a service at their home church in Raleigh, North Carolina a few weeks later.

We could have never imagined that less than two years later, we would be sitting in that same church, once again shedding tears, only this time not the bouncy happy ones but the heavy very wet ones that burn.

I still see those two days – their wedding day and Kristel’s memorial – together, like two sides of a coin. Heads – a long and happy marriage. Tails – a slow but certain fade to darkness.

dance on air Fig. to be very happy; to be euphoric enough as to dance on air. Photo courtesy of Justin Cook Documentary Weddings.

I can picture Mary and Kristel dancing together at the entrance to the sanctuary of their church as guests were arriving on that sunny but brisk afternoon in late March.

It was a little unorthodox for sure, but it was so them. And God, they looked so happy. I’m sure I’ll never hear the term “dancing on air” again without seeing those two on that day.

They made the promises most couples make on their wedding day, not knowing that many of them would soon be tested. Kristel was diagnosed with Stage IV cervical cancer almost exactly a year later.

Maybe it’s good that we never know what’s next.

Stage IV cancer will pretty much coldcock any conversation to a halt.

They shared the news on Facebook in a very straightforward manner and then Kristel set up an on-line journal that folks could sign up to follow. Here’s where I need to tell you that Kristel was also one of the funniest people I have ever met. She had a very southern accent (think Renee Zellweger in Cold Mountain) which made everything she said even funnier. So I was not surprised when she named her on-line site, “Go to You Glow” – a reference to her first IV treatments to flush out the toxins that were promoting the growth of her cancer.

She went through several crushing rounds of chemotherapy and yet her posts remained upbeat and laced with gratitude, another Kristel trait. She even managed to find the upside to losing her hair in her post on September 2, 2015.

I am getting used to being bald and it feels good to rub my bald head. It’s surprising how good rain feels on my scalp and the sunlight and a cool breeze.

Kristel made bald beautiful and fun.

In early September of last year, I made a post about a dear friend from grade school who had just been diagnosed with tongue cancer and was beginning a brutal regimen of chemotherapy and radiation.

Kristel was one of the very first folks I heard from after that post. She private messaged me on Facebook to tell me that I, or my friend, could contact her if she could help in any way. She said, “I won’t play counselor or physician. I could be a confidential friend for what to prepare for. Just an offer, because whoever you love, I love.”

I read her message at my desk that morning and crumbled. I was astonished and humbled by her enormous capacity for empathy in the face of her own mortality.

She went on to tell me the things she wished someone had told her before she began her treatments – like chemo makes you feel like your insides are being stripped out.

And then she did something that I will never forget. She asked me for my friend’s address so that she could send her a hand colored postcard with a word of hope and strength.

Kristel creating.

I still don’t have the words for this.

I just finished reading When Breath Becomes Air, a devastatingly exquisite memoir by Paul Kalanithi, a neurosurgeon who was diagnosed with Stage IV lung cancer at the age of 36. He died last year before his manuscript was completed and his discerning words have made me think of Kristel a lot. He writes, “I would have to learn to live in a different way, seeing death as an imposing itinerant visitor but knowing that even if I’m dying, until I actually die, I am still living.”

This is how Kristel died – living.

She rode her bike when she could, she went fishing with her family and she started a card “ministry” at her church. And she and Mary went to Oregon last fall for a grand adventure.

Mary (left) and Kristel, sweethearts and sweet hearts.

She kept living.

I could or would beat myself up or be miserable about the things I can’t do or the mistakes I’ve made or what I can’t control. Instead, I think I’ll pat myself on the back for doing my best to get over the hurdles and for having a decent attitude. I can’t control what life throws at me but I can control my reaction. August 2, 2015

Her posts became more infrequent and then there was a menacing silence on her site. Finally, Mary posted on January 5^th and shared that Kristel was resting comfortably at home and getting hospice care. The end was near and she died peacefully surrounded by family and friends a few days later.

Mary’s status update on the day of Kristel’s memorial service.

Kristel’s memorial service was as wonderfully unorthodox as her wedding. There were plenty of tears but it was a genuine and joyful celebration of life. Interspersed throughout the service were Kristel’s own words taken from her journal posts, now a liturgy of hope and gratitude.

The service concluded with a wonderful responsive benediction crafted from her entry of June 14^th.

Leader: As you go out in the world today, remember to smile.

People: Try to stay out of the heat, be thankful for the air conditioning.

Leader: Say at least 3 nice things to others, say at least 3 nice things to Yourself.

People: Be kind to your partner/spouse.

Leader: Drink lots of water.

People: Hug your children.

Leader: Hug your friends and parents.

People: And be aware of wonder.

Leader: My love to you all.

We could still hear the refrain of the last hymn, Sweet, Sweet Spirit, as we slowly made our way out of the church:

There’s a sweet, sweet Spirit in this place.

Sweet, indeed.

Epilogue: My friend from grade school had a PET scan last week revealing the acronym all cancer patients pray for – NED – no evidence of disease. I can see Kristel smiling at this news.

What’s in a name? Sweet Kristel.

Make a wish

My mother always made me feel special on my birthday. Every year she picked out the perfect Barbie doll, the best stuffed animal, the prettiest bracelet. When I look back on my birthdays as a kid, it’s not so much a particular gift or image that I remember most, it’s a feeling, how the people I love, especially my mom, made me feel important.

For years, my mom hung a Happy Birthday sign above the sink in our kitchen, chunky letters in every color of the rainbow strung together. It was the first thing I’d see when I came downstairs from my bedroom. As I stood sleepy-eyed in my pajamas, she’d sing “Happy Birthday” in a country-western twang with such passion – and volume – even though she doesn’t have the best singing voice. She still calls my sisters and me on every birthday and sings to us. I always let her call go to voicemail because I like to play the message over and over; it makes me smile.

What also made my birthdays so special every year as a kid was being able to design my own birthday cake. We went to a bakery called Mr. Baker, where your senses were greeted with the scent of vanilla icing whenever you stepped through the door. I loved the ritual of going with my mom to pick up my birthday cake and riding home with it sealed in a traditional white cake box. The anticipation of waiting to eat it drove me crazy. At age 36, I have not outgrown that and probably never will.

I took my birthday cake seriously as a kid – and still do. I had obsessions with Snoopy and Garfield when I was a child, so naturally they ended up on a lot of my cakes during my early childhood. I can still picture my double-layer cake with Garfield drawn on the top of it. It was my fifth or sixth birthday, and my whole family was gathered in the dining room, the lights dim and golden. My mom’s face glowed in birthday candlelight as she walked toward me with my Garfield cake, and everyone started to sing “Happy Birthday.” I burst into tears before I could blow out the candles. I ran to my room and threw myself down on the bed, burying my face in my pillow. My mom scooped me up, and I cried into her chest unable to explain the tears.

Now, as an adult, I know the reason. It wasn’t just that my mom ordered me the perfect Garfield cake; it was that everyone I loved was gathered in the same room to celebrate me, my life. That birthday was the first time that I recognized what it means to be truly loved and cared about.

I carried that same feeling with me throughout the day on Wednesday as I celebrated my 36^th birthday. All day I felt surrounded by so much love from the moment I first opened my eyes and saw my husband smiling back at me. Sweet text messages and phone calls trickled in throughout the day, each birthday wish touching my heart. After the tough couple of months I’ve been going through, it felt good to truly feel joyful for one day.

My husband can’t cook, but he’s great at ordering takeout. When I walked into our kitchen on the morning of my birthday, he had set a table for two with a Chick-fil-A biscuit and golden hash browns waiting for me — my twice a year guilty pleasure. He went into work a little later that morning so we could eat breakfast together. It was a simple gesture, but it felt grand to me.

Later that afternoon, two of my dear friends treated me to lunch at one of my favorite restaurants. When I arrived, they were seated in a booth with a small flower pot of yellow Gerbera daisies on the table and the biggest balloon I had ever seen attached to it with spirals of multicolored ribbon. I shrieked with glee when I saw it — and teared up a little, too. Those little touches sure made this birthday girl feel special. I left our lunch that day with my heart full — and my face sore from laughing so much. Good friends always know what our hearts need.

Afterwards, I went for a stroll in the woods with my dog Molly, and as I walked among the towering pines and the wisteria in bloom, I paused and looked up, taking it all in, this vast and beautiful world. My eyes, my senses, my heart — they felt wide open. In the middle of the woods, this place that I cherish, my daily haven, I felt a deep connection to the universe. Among the rubble of winter’s fallen trees and bare branches, new life was unfurling all around me. Birds chirped. Four monarch butterflies danced in a figure eight near me. Wisteria’s delicate lavender flowers clung to their vine. I thought about these last two months and all the grief that has consumed me, and I realized even in the midst of sorrow there are gifts. You just have to open your eyes, and your heart to see them.

When I got home, there was a card waiting from me from my best friend Addison, who I share this blog with. The cover of the card pictures a cluster of cars, traveling in different directions, and a young girl on a bike looking over her shoulder while pedaling away from them. “I like to think that this is you pedaling even further past the grief that began this year,” she wrote. “You’re looking back a wee bit but pedaling forward to your next adventure.”

I love that analogy. It’s always a comfort when those we love can see a future beyond our grief. Reading Addison’s words gave me hope. Yes, I’m still glancing back at the past as I weather this season of change, but deep in my heart I believe the best is yet to come. Birthdays are a perfect way to mark a new beginning.

That night my oldest sister, brother-in-law and two nephews sang “Happy Birthday” to me via FaceTime – a virtual birthday party. Hearing my sweet nephews’ voices in the chorus of adults made me laugh as they sang with such fervor. This time there weren’t any tears, just laughter and gratitude. I took a deep breath, closed my eyes and made a wish. I wished for joy, but after I blew out the candles, and opened my eyes, I realized I already have it.

Rendezvous with grace

tickets

Last night I met a rock star. Well, not in the traditional sense of the term but in my world, a supernova.

I met the author Anne Lamott. She was speaking at Lenoir-Rhyne University as part of their Visiting Writers Series and before the program began, she simply walked out into the audience – no introduction, just started strolling down one of the aisles, shaking hands, signing books and posing for photos.

Anne Lamott. I love this face. Illustration by Jillian Yamaki, The New York Times.

She was in the section reserved for VIP’s but my friend, Lyz, and I broke ranks and slipped in for our close encounter with grace. There I was standing right in front of one of my very favorite authors and I, the clever one with all of the witty retorts, just froze.

Actually, I melted – into a puddle of salt.

Before you write me off as a post-menopausal ninny or worse, a literary stalker, let me give you some context for my emotional tsunami.

I’ve known about Anne Lamott since 1994 when I read her book, Bird by Bird: Some Instructions on Writing and Life. It’s an amazingly personal book about, well, writing, of course, but so much more. She shares her approach to writing but she also writes about her life – warts and all – in a remarkably honest and often wickedly funny way.

My well-worn copy.

She says, “You own everything that happened to you. Tell your stories. If people wanted you to write warmly about them, they should have behaved better.”

I do hope a few of you are squirming nervously now.

No, really, I don’t hold grudges. (Insert Muttley laugh.)

Be kind to your writer friends.

I dreamed about being a writer back then and I was mesmerized with her words. Mesmerized but not motivated to really write. I was in my late 30’s in a long-term relationship and had a loving and supportive family, premium cable and a good job that I liked a lot. I was leading a happy but seriously unexamined life.

In short, I didn’t have much to write about.

Be careful what you wish for.

A decade or so later, after losing my parents and my partner and perhaps a bit of my mind, I returned to Anne Lamott. And there she was – just like a trusted bestie you would share your heart with over coffee at the kitchen table.

Oprah loves Anne, too.

I picked up her book, Grace (Eventually): Thoughts on Faith, and it was a balm to my scabby soul. I kept that book by my bedside and read it and reread it as I navigated my way back to myself – and to God.

I clung to her nuggets of wisdom like a seagull to a Cheeto. Pearls like this, “Sometimes grace is a ribbon of mountain air that gets in through the cracks.”

And this, “I wish grace and healing were more abracadabra kind of things. Also, that delicate silver bells would ring to announce grace’s arrival. But no, it’s clog and slog and scootch, on the floor, in the silence, in the dark.”

Yes. I remember reading that passage and thinking that that’s exactly how I was feeling. “Me, too.”

And last night, this was Lamott’s advice to writers – to write what you would like to come upon. Write what is the best medicine for you and maybe through a little grace, someone reads your words and says, “Me, too.”

This was certainly the case for me and her book, Help, Thanks, Wow: The Three Essential Prayers. This book taught me how to pray. Maybe taught is not the right word. This book gave me permission to pray in my own way – my own messy unorthodox way.

Disclaimer: I’m an Episcopalian and we don’t really talk much about praying. That’s why we have the Book of Common Prayer chocked full of liturgy to follow. We don’t go rogue.

This became my book of uncommon prayer.

Lamott writes, “You might shout at the top of your lungs or whisper into your sleeve, ‘I hate you, God,’ That is a prayer too, because it is real, it is truth, and maybe it is the first sincere thought you have had in months.”

I read these words and thought, “Me, too.” And my aching loneliness seemed bearable in that moment.

Her words made me feel heard and there is no possible way to teach that in a writing class.

So when I found myself standing before this dear friend who I had never met but who had been with me through some of my darkest ugly cry hours, I crumbled. It was like having a reiki session in front of 1500 people, only Anne Lamott and I were the only ones in the room.

I really did panic for a moment when I couldn’t get my mouth to form words. She took my hand and I think I managed to gurgle out, “Thank you.” She looked into my eyes and smiled sweetly and held my hand for what felt like a long time. And then I felt my other hand raise and gently touch her cheek.

To her credit, she did not scream for security, she just softly nodded like she knew exactly what I was thinking in that moment.

It was as if she were saying, “Me, too.”

When Addy met Anne.

The honeymoon’s over

welcome-to-north-carolina

My wife and I will celebrate our second anniversary next month. We were married in Washington, DC five months before same-sex marriage became legal in our home state of North Carolina. We were tired of waiting and we thought that North Carolina would be one of the last sandbags against the rising tide of gay marriage.

And the Old North State would probably still have been holding hands with Alabama and Mississippi if not for the decision of an “activist” (bite me) judge who ruled on October 10, 2014 that the state’s denial of marriage to same-sex couples was unconstitutional.

2014 was a euphoric year for me and for everyone who supported marriage equality as state after state fell into the “I do” column. I went to more weddings that year than I had since my early post-college days when all of my hetero friends were getting hitched. I remember going to Crate and Barrel what felt like every weekend back then to peruse yet another gift registry. The straights love their pizza stones.

And all of those weddings that I attended two years ago were glorious in their own way, most especially my own.

I wanted to marry my wedding day I loved it so much.

I confess that I was cranky (admittedly, not an uncommon state for me) that I had to leave the state that I had lived in and paid taxes in for almost 20 years, the state that my wife was born in, to legally marry the person that I love. That said, we wanted the legal protections and benefits that marriage provided so we had to leave our home to protect our home.

Irony always tastes like metal to me.

So there we were on a sunny late afternoon in spring, standing in front of a minister, a few dear friends and vases of cherry blossoms. It was a wedding that neither of us had ever dared to dream of and it was so far away from the dark nightmare of May 8, 2012 when Amendment One passed with 61% of the vote.

We were surrounded by light and love and I have never felt more affirmed in my life. And it took 57 years for me to experience that feeling.

Now the state that I live in and pay taxes in has decided to once again legislate discrimination into law in the form of HB2, the Public Facilities Privacy and Security Act, making it illegal for cities to expand on state laws regulating among other things, workplace discrimination and minimum wage standards.

Protesters at a rally against HB2 in Raleigh. Photo courtesy of Mary Nations.

The Republican controlled legislature has reverted back to the fear mongering tactics that have served many states well over the past several years – you know, the old “God, guns and gays” strategy that Karl Rove and his cronies executed so efficiently. Just make it about everything but the real issues and scare the hell out of people along the way.

Instead of genuine concerns like health care, poverty and education, make it about going into the opposite sex restrooms to rape and pillage our women and children. Make it about transgender folks because, Lord knows, they haven’t endured enough harm from inane misconceptions. And for good measure, shorthand the bill by calling it “the bathroom bill” to sensationalize the matter and divert the true discriminatory intent.

Well guess what, Governor McCrory? We call bullshit on your bathroom bill. hb2meme

HB2 is unconscionable and it is mean and it is wrong.

And I am pissed off.

For the past 11 years, I worked for an AIDS service organization that provided services to mostly very poor people living with HIV. Their needs were great – housing, food and medical care. They also desperately needed acceptance and affirmation and damned if we weren’t pretty good at providing those things, too.

Stigma is still a huge issue for anyone living with HIV/AIDS and HB2 cultivates stigma against LGBT North Carolinians in disgusting ways by promoting fear and ignorance over understanding and acceptance. And, as these bills always do, it marginalizes the least among us – the ones without money or power or position – the ones who are different.

Art courtesy of a brave soul living with HIV/AIDS.

It seems as if every hour another business is coming out against HB2 including PayPal which announced yesterday that it would not proceed with a planned expansion in Charlotte, costing North Carolinians 400 good paying jobs.

Maybe money is the only thing that will get the attention of the governor and the legislature but that makes me mad, too. This shouldn’t be about money; this should be about basic human decency, which should never be a partisan issue.

The past few weeks I’ve revisited the words of the late great Harvey Milk, as I often do in times of civil strife. His words have a clarity and timelessness that fortify me.

It takes no compromise to give people their rights. It takes no money to respect the individual. It takes no political deal to give people their freedom. It takes no survey to remove repression. ~Harvey Milk

What’s at stake in North Carolina today goes way beyond party lines. It is time for all North Carolinians to put their principles over their politics and their paychecks.

It is time for all of us to exchange our vows.

“We are not this.”

Amen.

Permanent record

report card meme

I ran across my 5^th grade report card yesterday when I was emptying the last remains of the storage unit I’ve had for the past two and half years.

I know what you’re thinking – why did I save my 5^th grade report card, right? You’d have to ask my dear departed mother because it was in a box with assorted odds and ends that she had saved over the years, including the most hideous Plaster of Paris mold ever made that I painted at summer camp when I was nine. Jeez, what a mother does for love, I guess.

Crap only a mother could love.

Anyway, the yellowed report card made me laugh out loud and once again supported that adage that the more things change; the more they stay the same.

Let me explain. Back in the olden days when I was in elementary school, in addition to the various subjects such as reading, writing and arithmetic, students also received a grade of satisfactory or unsatisfactory under a heading of Citizenship. Included under this odd section were items such as “Practices Self Control” and “Takes Care of Personal and School Property.” I noticed a big “U” with an asterisk beside it in the 3^rd report period under this category and below the grading grid, the teacher had written by the asterisk, “messy desk.”

U not good.

Yes, the dye was cast early on with that label. I’ve always worked better in a slightly less than organized environment. Quite frankly, I don’t trust a desk that’s overly neat. You know the type – like the one the person in the bank has where the only thing on top of the desk is a phone and a business card holder. They’re just too clinical.

Be afraid. Be very afraid.

I also received consistent “C’s” for writing – as in handwriting. My mother wrote back in one of the comment sections, “I do hope Addison will improve her writing.” Yeah, that didn’t work out so well, Mom.

Apparently I started out poorly and only got worse. These days I could forge the Unabomber’s signature with ease. I’m not proud of it and I’m not exactly sure when the deterioration began. I really don’t think about it until my wife looks at the grocery list I’ve written and says, “Do we really need eye of newt?” And then I look at the list indignantly and snap, “That says Cream of Wheat.”

These days I think I could get an S-. Or a U+.

Not to worry, the 5^th grade apparently ended well with the final comment from Mrs. Reeves being, “It’s been a pleasure teaching Addison this year.” And, yes, I’m sure she wrote that note on the other 27 report cards that year.

And one of the sweet gifts of growing up in the small town of Harrisonburg, Virginia, Mrs. Reeves attended my mother’s memorial service about 35 years later. She came to the reception my family hosted after the service and as she walked towards me, I could feel my hands getting clammy. You know how you would always get nervous if you saw your teacher in the grocery store or anywhere out of context?

She took my hand and said, “Hello, Addison.” I took a deep breath and before I could speak she said, “That was a very well written eulogy that you gave.”

And that more than made up for that “U” she gave me.

Exactly.

Bookends

Two writers. One blog.